When was the last time you spent an entire day learning from Australia’s leading myasthenia gravis experts while surrounded by people who truly understand your journey? 

On Saturday 31 October 2026, the Myasthenia Alliance Australia invites patients, carers, family members, health professionals and supporters to come together for a full day dedicated to education, connection and community. 

Whether you’ve recently been diagnosed or have been living with MG for many years, this conference has been carefully designed to provide practical information you can take home and use. 

Learn From Australia’s Leading MG Experts 

Throughout the day you’ll hear from respected neurologists, researchers and clinicians who are helping shape the future of MG care in Australia. 

Topics include: 

• New and emerging MG therapies
  • Current treatment options and practical considerations
  • Clinical trials and the latest research
  • Diagnostic advances and MGBase research
  • Real-world research into heat and workforce participation
  • Education, advocacy and resources available through the MAA 

You’ll also have the opportunity to ask your own questions during a dedicated panel discussion with the conference speakers. 

More Than Just Presentations 

Some of the most valuable moments happen between the sessions. 

Over morning tea, lunch and afternoon tea, you’ll have time to meet others living with MG, share experiences and build connections with people who genuinely understand the challenges and successes that come with the condition. 

Whether you’re attending as a patient, family member, carer or healthcare professional, you’ll leave with new knowledge, fresh perspectives and meaningful conversations. 

A Day Designed Around the MG Community 

This isn’t a medical conference designed only for clinicians. 

It’s a conference created specifically for the MG community, combining expert education with practical discussions and opportunities to connect with others in a welcoming and accessible environment. 

If you’re looking to better understand MG, stay informed about the latest developments and become part of a supportive community, we’d love to welcome you. 

Saturday 31 October 2026
Rydges South Bank, Brisbane
9.00 am to 4.30 pm
$90 per person (includes morning tea, lunch and afternoon tea) 

Join us for a day of learning, sharing and connection.

REGISTER NOW 

MGNSW invites people to attend the Sydney event! 

Join Myasthenia Gravis NSW for a rare opportunity to hear from internationally respected German neurologist, Professor Heinz Wiendl, hosted by Alexion, AstraZeneca Rare Disease.

Living with myasthenia gravis can bring daily challenges that are not always seen or fully understood. This intimate event will explore the real impact of the condition on everyday life, quality  of life, and what can happen between appointments that may not always be visible in the clinic.

Prof. Wiendl will also share his thoughts on patient empowerment and how to have more  meaningful conversations with your healthcare team about what matters most to you.

Whether you are living with myasthenia gravis or supporting someone who is, this is a unique chance to come together, hear from a leading international expert, connect with others who understand, and feel part of a supportive community. 

We warmly encourage you to join us for what promises to be a thoughtful and engaging event. Lunch will be provided. 

Thursday 3rd September
11.30 pm – 12.30 pm
Gate/3 Hospital Rd, Concord NSW 2138 

Please note: 

This session will not be recorded, so in-person attendance is strongly encouraged. 

Attendance is limited to people living with myasthenia gravis and their caregivers. 

If you would like to attend, RSVP by completing the form. 

REGISTER NOW 

Excerpt 

Join Myasthenia Gravis NSW for a rare opportunity to hear from an internationally respected German neurologist, Professor Heinz Wiendl. Thursday 3rd September at 11.30 am. ANZAC Research Institute, Gate 3, Hospital Road, Concord NSW

REGISTER NOW 

MGAQ invites you! 

Join Myasthenia Gravis QLD for a rare opportunity to hear from an internationally respected German neurologist, Professor Heinz Wiendl, hosted by Alexion, AstraZeneca Rare Disease. 

Living with myasthenia gravis can bring daily challenges that are not always seen or fully understood. This intimate event will explore the real impact of the condition on everyday life, quality of life, and what can happen between appointments that may not always be visible in the clinic. 

Prof. Wiendl will also share his thoughts on patient empowerment and how to have more meaningful conversations with your healthcare team about what matters most to you. 

Whether you are living with myasthenia gravis or supporting someone who is, this is a unique chance to come together, hear from a leading international expert, connect with others who understand, and feel part of a supportive community. We warmly encourage you to join us for what promises to be a thoughtful and engaging event. Afternoon tea will be provided. 

Wednesday 2nd September
3.00 pm – 4.30 pm
Donna Changg
171 George Street, Brisbane City, QLD, 4000 

Please note: 

This session will not be recorded, so in-person attendance is strongly encouraged. 

Attendance is limited to people living with myasthenia gravis and their caregivers. 

If you would like to attend, RSVP by completing the form. 

Excerpt 

Join Myasthenia Gravis QLD for a rare opportunity to hear from an internationally respected German neurologist, Professor Heinz Wiendl. Wed 2nd September at 3.00 pm. 171 George Street, Brisbane, QLD 

REGISTER NOW 

MGNSW invites people to attend the Sydney event! 

Join Myasthenia Gravis NSW for a rare opportunity to hear from internationally respected German neurologist, Professor Heinz Wiendl, hosted by Alexion, AstraZeneca Rare Disease.

Living with myasthenia gravis can bring daily challenges that are not always seen or fully understood. This intimate event will explore the real impact of the condition on everyday life, quality  of life, and what can happen between appointments that may not always be visible in the clinic.

Prof. Wiendl will also share his thoughts on patient empowerment and how to have more  meaningful conversations with your healthcare team about what matters most to you.

Whether you are living with myasthenia gravis or supporting someone who is, this is a unique chance to come together, hear from a leading international expert, connect with others who understand, and feel part of a supportive community. 

We warmly encourage you to join us for what promises to be a thoughtful and engaging event. Lunch will be provided. 

Thursday 3rd September
11.30 pm – 12.30 pm
Gate/3 Hospital Rd, Concord NSW 2138 

Please note: 

This session will not be recorded, so in-person attendance is strongly encouraged. 

Attendance is limited to people living with myasthenia gravis and their caregivers. 

If you would like to attend, RSVP by completing the form. 

REGISTER NOW 

Excerpt 

Join Myasthenia Gravis NSW for a rare opportunity to hear from an internationally respected German neurologist, Professor Heinz Wiendl. Thursday 3rd September at 11.30 am. ANZAC Research Institute, Gate 3, Hospital Road, Concord NSW

REGISTER NOW 

MGAQ invites you! 

Join Myasthenia Gravis QLD for a rare opportunity to hear from an internationally respected German neurologist, Professor Heinz Wiendl, hosted by Alexion, AstraZeneca Rare Disease. 

Living with myasthenia gravis can bring daily challenges that are not always seen or fully understood. This intimate event will explore the real impact of the condition on everyday life, quality of life, and what can happen between appointments that may not always be visible in the clinic. 

Prof. Wiendl will also share his thoughts on patient empowerment and how to have more meaningful conversations with your healthcare team about what matters most to you. 

Whether you are living with myasthenia gravis or supporting someone who is, this is a unique chance to come together, hear from a leading international expert, connect with others who understand, and feel part of a supportive community. We warmly encourage you to join us for what promises to be a thoughtful and engaging event. Afternoon tea will be provided. 

Wednesday 2nd September
3.00 pm – 4.30 pm
Donna Changg
171 George Street, Brisbane City, QLD, 4000 

Please note: 

This session will not be recorded, so in-person attendance is strongly encouraged. 

Attendance is limited to people living with myasthenia gravis and their caregivers. 

If you would like to attend, RSVP by completing the form. 

Excerpt 

Join Myasthenia Gravis QLD for a rare opportunity to hear from an internationally respected German neurologist, Professor Heinz Wiendl. Wed 2nd September at 3.00 pm. 171 George Street, Brisbane, QLD 

When was the last time you spent an entire day learning from Australia’s leading myasthenia gravis experts while surrounded by people who truly understand your journey?

On Saturday 31 October 2026, the Myasthenia Alliance Australia invites patients, carers, family members, health professionals and supporters to come together for a full day dedicated to education, connection and community.

Whether you’ve recently been diagnosed or have been living with MG for many years, this conference has been carefully designed to provide practical information you can take home and use.

Learn From Australia’s Leading MG Experts

Throughout the day you’ll hear from respected neurologists, researchers and clinicians who are helping shape the future of MG care in Australia.

Topics include:

• New and emerging MG therapies
  • Current treatment options and practical considerations
  • Clinical trials and the latest research
  • Diagnostic advances and MGBase research
  • Real-world research into heat and workforce participation
  • Education, advocacy and resources available through the MAA

You’ll also have the opportunity to ask your own questions during a dedicated panel discussion with the conference speakers.

More Than Just Presentations

Some of the most valuable moments happen between the sessions.

Over morning tea, lunch and afternoon tea, you’ll have time to meet others living with MG, share experiences and build connections with people who genuinely understand the challenges and successes that come with the condition.

Whether you’re attending as a patient, family member, carer or healthcare professional, you’ll leave with new knowledge, fresh perspectives and meaningful conversations.

A Day Designed Around the MG Community

This isn’t a medical conference designed only for clinicians.

It’s a conference created specifically for the MG community, combining expert education with practical discussions and opportunities to connect with others in a welcoming and accessible environment.

If you’re looking to better understand MG, stay informed about the latest developments and become part of a supportive community, we’d love to welcome you.

Saturday 31 October 2026
Rydges South Bank, Brisbane
9.00 am to 4.30 pm
$90 per person (includes morning tea, lunch and afternoon tea)

Join us for a day of learning, sharing and connection.

We have the data, we have the conversations and we have the activities to show the exceptional increase in contact that has occurred as a result of the many awareness activities that happened in Australia in 2026. 

The MAA were very focused on the Art With Heart campaign. It ran for a six month period culminating in a record number of donations ensuring significantly more website traffic, broader community support and engagement, and lots of fun thanks to the bidding process. 

The MAA express sincere thanks to all the contributors, to the bidders and to the volunteers who worked tirelessly to make this project happen. Particular thanks is given to our key artists Hermann Pakel, Chris Searle and Lyn Church, who initiated this project and remained firm supporters throughout all three campaigns.  

Queensland awareness activities in 2026 were hugely varied with awesome results. Many structures across the State lit up in teal colours throughout the month of June. A “Walk for Myasthenia Gravis Awareness” happened in Brisbane city.  This was a first time event! It was community lead with over 100 people participating. Townsville’s Cowboys Rugby Club went all out to endorse the awareness month even getting media involved. 

New South Wales hosted a special event inviting Paralympian, wheelchair rugby player, Richard Voris to speak. Richard has MG and still achieves so much! Such an inspiration. The lunch event brought together patients and their families, both long-time members and a few new people who could share their journey and connect with fellow patients in person.  

Beanies were made and distributed by our nine year old Victorian patient and many more gatherings and activities were hosted across the country. If anyone is still to share details of their event the MAA would be keen to receive an email or two! 

We are aware that many people struggle to understand the depth of work conducted by the MAA. Please let us thank everyone for this tremendous engagement across the full range of activities. Be assured that this wide ranging connection assists the MAA so very much in the work that we do.  

It supports us as we engage internationally, as we work with Pharmaceutical Companies assuring them that our patient community does indeed encourage the huge investment required to bring new and innovative products to this country, it gives researchers confidence that their work can be effective, it shows government that our united voice is strong and meaningful! Even Health Minister Butler referenced the significant work that is undertaken by patient communities and thanked the MAA for giving this patient group a strong voice. It also makes day-to day living easier for individuals if more people learn something about life with myasthenia. 

TOGETHER WE ARE STRONG! TOGETHER WE LEAD A BETTER LIFE!  

The efforts of our State Associations in providing ‘on the ground support’ have been fundamental in this MG community engagement. This has been invaluable as MAA works to advance national agenda items. 

Again, the MAA thank each and everyone who gave of their time, who told a story, who purchased an art piece and so much more. 2026 has been a great year for awareness!  

Virtual Kitchen Table Peer Support Sessions

Living with myasthenia gravis can sometimes feel isolating, but you don’t have to navigate the journey alone.

The Myasthenia Alliance Australia is pleased to partner with Rare Voices Australia to offer Virtual Kitchen Table Peer Support Sessions, providing a welcoming online space where people affected by rare diseases can connect, share experiences and learn from one another in small, supportive groups.

Upcoming sessions

Wednesday 5 August 2026

People living with a rare disease disability (including myasthenia gravis)

12:00 pm to 1:00 pm (AEST)

Family members and carers

8:00 pm to 9:00 pm (AEST)

What can you expect?

These sessions provide an opportunity to:

• Connect with others who understand the challenges of living with or caring for someone with MG.

• Share practical experiences and coping strategies.

• Learn from others in a supportive, judgement-free environment.

• Participate as much or as little as you feel comfortable.

The August discussion will focus on Coping with Change and Transitions.

Places are limited

To ensure everyone has the opportunity to participate, each session is limited to just 12 participants.

If you would like to attend, we encourage you to register as soon as possible.

Find out more and register here >>

Living with Living with myasthenia gravis (MG) often means navigating new information, changing symptoms and treatment decisions. Whether you’ve been recently diagnosed or have been living with MG for many years, having access to reliable, practical resources can make managing your condition a little easier.

That’s exactly why the Myasthenia Alliance Australia (MAA) Patient Toolkit was created.

The Patient Toolkit brings together trusted resources, practical tools and educational information in one easy-to-access location. Rather than searching across multiple websites or wondering where to find the latest information, you’ll find a growing collection of resources designed specifically for Australians living with MG.

What’s inside the Patient Toolkit?

The toolkit continues to expand, but currently includes resources such as:

• MG Connect Symptom Tracker App
  Track your symptoms using the MG-ADL scale, monitor changes over time and create reports that can support more informed conversations with your neurologist.

• Drugs to be Used with Caution
  Access important information about medicines that should be used with caution if you have myasthenia gravis, helping you have informed discussions with your healthcare team.

• Know Your Type of MG
  Understanding your diagnosis is an important part of managing your condition. This resource helps explain the different types of MG and why knowing your specific diagnosis matters.

• Educational Webinars
  Learn directly from neurologists, healthcare professionals and experts through a growing library of educational webinars covering treatment, symptom management, research and practical living with MG.

• IVIG Treatment Information
  Find practical guidance about intravenous immunoglobulin (IVIG), including how to access treatment and what to expect.

• Latest MG News and Updates
  Stay informed with the latest articles, research updates, treatment announcements and patient resources as they become available.

Visit the Patient Tool Kit Now – https://myastheniaalliance.org.au/patient-tool-kit/ 

A resource that continues to grow

The Patient Toolkit isn’t static. New resources, educational content and practical tools are added regularly to ensure people living with MG have access to the latest information and support.

We encourage you to bookmark the page and check back often. Whether it’s a new webinar, a helpful guide or an important treatment update, you’ll always find the latest additions in one convenient place.

Help us build an even better toolkit

The best ideas often come from people living with MG.

If there’s a resource, guide, tool or educational topic that would make managing your condition easier, we’d love to hear from you. Your feedback helps us continue building a toolkit that genuinely supports the Australian MG community.

Together, we can ensure people living with myasthenia gravis have access to the information, tools and support they need, when they need it most.

Explore the Patient Toolkit today and discover resources designed to help you better understand and manage life with myasthenia gravis.

Our upcoming webinar with Rare Voices Australia is just a few days away, and this is your last chance to register. 

If you’ve been thinking about attending, now is the perfect time to secure your place for this valuable educational session designed specifically for people living with Myasthenia Gravis, along with their families and carers. 

Presented by Fiona Lawton, Disability Advocacy Manager for Rare Voices Australia, this webinar will explore how a rare disease can also become a disability and what that means when accessing disability supports and services.  

The session will cover: 

• Understanding rare disease and disability  

• The Rare Disease Disability Toolkit  

• Disability advocacy and self-advocacy  

• The NDIS and supports beyond the NDIS  

• Live questions from attendees  

If you’ve ever wondered whether you may be eligible for additional supports, or simply want to better understand the disability landscape, this webinar offers practical information that could help you navigate your options with greater confidence. 

Webinar Details 

Tuesday 28 July 2026 

12:30pm to 1:30pm AEST 

• NSW, VIC, QLD, TAS, ACT: 12:30pm to 1:30pm  

• SA, NT: 12:00pm to 1:00pm  

• WA: 10:30am to 11:30am  

If you are unable to attend on the day, don’t worry. Everyone who registers will still be able to access the webinar recording afterwards via the MAA website.  

Registrations close soon, so don’t miss this opportunity. 

https://rumi-live.zoom.us/webinar/register/WN_sGU-mCfbTMWWadz69_FYVQ#/registration 

Know when and how to reach out to your healthcare team when MG symptoms change. 

Explore key takeaways and watch the MAA educational webinar HERE. 

Registrations are now officially open for the Myasthenia Alliance Australia (MAA) 5th National Patient Conference, taking place on Saturday 31 October 2026 at Rydges South Bank, South Brisbane.

Whether you’re living with myasthenia gravis (MG), supporting a loved one, or simply wanting to stay informed about the latest developments in MG care, this conference offers a unique opportunity to connect, learn and be inspired.

A Day Designed for the MG Community

Hosted by the MAA in collaboration with the MAA Medical Advisory Board, this full-day event has been carefully designed to be informative, welcoming and accessible.

From 9:00 am to 4:30 pm, you’ll enjoy:

• Presentations from leading clinicians and experts in myasthenia gravis

• Updates on the latest research, treatments and future directions

• Opportunities to ask questions and engage with specialists

• Round table seating designed to encourage conversation and connection

• Morning tea, lunch and afternoon tea

• Excellent disability access throughout the venue

• The chance to meet others who truly understand the MG journey

This year’s conference theme invites attendees to Learn, Share and Engage, creating an environment where knowledge, lived experience and hope come together.

Why Attend?

Living with a rare condition can sometimes feel isolating, but you are not alone.

The National Patient Conference brings together people from across Australia to build connections, gain practical knowledge and hear directly from experts who are helping shape the future of MG care.

Whether you’ve been recently diagnosed or have lived with MG for many years, you’ll leave with greater confidence, valuable insights and meaningful connections within the community.

If you’re unable to attend in person, presentations will be recorded and made available following the event.

Event Details

MAA 5th National Patient Conference
Date: Saturday 31 October 2026
Time: 9:00 am to 4:30 pm (Registrations open from 8.30am)
Venue: Rydges South Bank, South Brisbane
Ticket Price: $90 per person (GST inclusive)

Your registration includes:

• Full-day conference admission

• Morning tea

• Lunch

• Afternoon tea

• Access to all presentations and sessions

Secure Your Place Today

Places are expected to fill quickly, so we encourage you to register early to avoid missing out on this special event.

We look forward to welcoming you to Brisbane for a day of learning, connection and community as we continue building a brighter future for everyone affected by myasthenia gravis.

Thank You to Our Conference Sponsors

The Myasthenia Alliance Australia sincerely thanks our conference sponsors for their generous support of the MAA 5th National Patient Conference. Their commitment helps make this important event possible, supporting education, collaboration and connection for people living with myasthenia gravis across Australia.

We gratefully acknowledge the support of:

• Alexion Pharmaceuticals Australasia Pty Ltd

• UCB Australia Pty Ltd

• CSL Behring (Australia) Pty Ltd

• Merck KGaA

• Argenx Australia Pty Ltd

We thank each of our sponsors for their ongoing commitment to improving outcomes for the myasthenia gravis community.

Register today and join us to Learn, Share and Engage.

There is still time to register for our upcoming educational webinar, The Rare Disease Disability Toolkit with Rare Voices Australia, taking place on Tuesday 28 July 2026.

Living with Myasthenia Gravis (MG) can present different challenges for every person. While some people experience fluctuating muscle weakness that affects everyday activities, others may find that their condition impacts employment, mobility or independence. Understanding the supports that may be available can make an important difference.

Myasthenia Alliance Australia is pleased to welcome Fiona Lawton, Disability Advocacy Manager for Rare Voices Australia (RVA), for this informative webinar exploring the relationship between rare disease and disability. Fiona leads the national Rare Disease Disability Project and brings more than 25 years of experience in government, disability advocacy and stakeholder engagement.

During this webinar, Fiona will discuss:

• When a rare disease may also be considered a disability

• The Rare Disease Disability Toolkit and how it can assist people living with rare disease

• Disability advocacy and self-advocacy

• The National Disability Insurance Scheme (NDIS)

• Supports that may be available beyond the NDIS
• An opportunity to ask your questions during the live Q&A session

Whether you already receive disability supports or are simply looking to better understand what services may be available in the future, this webinar will provide practical information and trusted guidance.

Webinar Details

Tuesday 28 July 2026

12:30pm to 1:30pm AEST

• NSW, VIC, QLD, TAS, ACT: 12:30pm to 1:30pm

• SA, NT: 12:00pm to 1:00pm
• WA: 10:30am to 11:30am

If you can’t attend live, a recording will be made available on the MAA website after the event.

Register today using the link below.

https://rumi-live.zoom.us/webinar/register/WN_sGU-mCfbTMWWadz69_FYVQ#/registration

Living with myasthenia gravis (MG) can be unpredictable, and symptoms often fluctuate between clinic visits. The MG Connect Symptom Tracker App, developed with input from people living with MG, helps capture day-to-day changes and have more focused conversations with your neurologist. 

Built around the widely used Activity of Daily Living scale (MG-ADL), the app lets you quickly log how MG affects everyday activities including speaking, chewing, rising from a chair, brushing hair with brief weekly check-ins. Your data stays on your device and is only shared by you, directly with your clinician. You can use the app offline and set personalized reminders to build a tracking habit. 

Clear trend graphs and a downloadable PDF report make it easier to spot patterns and align treatment goals with your care team. One user shared: “From the graph, my specialist quickly understood the symptom changes I’d been experiencing.” 

While MG-ADL provides a strong framework, it is still important you personalize your reports, capturing fluctuations and any symptoms that matter to you, even if they’re not in the MG-ADL scale. 

Get started: Search “MG Connect” in the Apple App Store or Google Play Store to download. Then register, take your first MG-ADL survey, set weekly reminders, and bring your PDF report to your next neurology visit. An App User Guide is also available, and printed tools are available to download from our Patient Toolkit tab on the website.  

The MG Connect App was developed by Alexion Astra Zeneca Rare Disease and is available to anyone impacted by MG. 

Download the app today!