Links
Medical Bracelets
A medical bracelet can be a life saver during an MG crisis.
Thymus and Thymoma
www.emedicine.com/med/topic2752.htm
– discussion on the thymus and thymomas, including images and case histories.
General Health Sites
www.betterhealth.vic.gov.au – the Better Health Channel, established by the Victorian Government (Australia) to provide online health information.
Support Organisations
– Victoria support group.
– site of the Western Australia Myasthenia Gravis Friends and Support Group. Have prepared a hardcopy handbook which is available upon request.
www.mgaq.org.au– site of the Myasthenia Association of Queensland Inc (Australia)
www.myasthenia.org
– the site for Myasthenia Gravis Foundation of America. Another excellent site for an overview on the disease.
– Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
https://raremark.com/myasthenia-gravis
– Doctors can find it difficult to recognize someone with a rare condition. On average, a person with a rare disease can expect to be misdiagnosed three times in eight years. Raremark helps to educate patients, so they can help their doctor to recognize their symptoms. It wants people to be more informed about their condition and comfortable discussing options with their healthcare team.
www.brainaustralia.org.au
– site for Brain Foundation, which provides support, education and research on incidence and impact of disorders of the brain, spinal cord and nervous system.
Lambert Eaton Myasthenic Syndrome https://www.facebook.com/groups/24507873315/
– support group for people with LEMS. Also, see https://www.myaware.org/ for more about LEMS.
Drugs Which May Aggravate MG
https://www.myaware.org/drugs-to-avoid
– a detailed list of drugs which may have an adverse effect on MG.
www.drugwatch.com
– Drugwatch.com features up to date information on the drug side effects of prescription and over-the-counter medications [please note that this is not restricted to issues relating to myasthenia]. Current drug alerts for women include side effects which include stroke, heart attack and severe depression.
Dogs and MG
www.vetinfo.com/dmyasthenia.html
– yes even man’s best friend is susceptible to MG